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Tami · Posted: Sat Feb 23, 2008 11:03 pm Post subject: Being a supporter can be hard!!

Its so hard being a supporter of ch sometimes.

Today ike got hit real bad and it was really hard to watch and not be able to do anything.

To you supporters out there how do u feel when ur loved 1s are getting hit?????

Ike · Posted: Sun Feb 24, 2008 2:35 pm Post subject:

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If you dance with the devil the devil don't change, The devil changes you

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Ike · Posted: Sun Feb 24, 2008 4:12 pm Post subject:

its so hard to fight you tam, i know that everything you are doing you are doing to help. but when it hurts that bad all reason goes out of the window, all you can think about is the pain ,

when i say F**k off and leave me the hell alone i mean just while im hurting, i cant have you near me when im like that but on the other hand all i want is you there.

id be know where with out you.

so much respect to all supporters.
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

Sherri · Posted: Mon Feb 25, 2008 1:00 pm Post subject:

:smt022

Exactly. It's impossible to see past the pain...and we really believe that we are going to feel that way for the rest of our lives at the moment...it hurts SOOOOOOOOOOO BADLY...there are no words.

And believe us when we tell you...it KILLS US to hurt you...with our words, actions...sometimes becoming violent...and it's so frustrating that there's no way for us to explain it so you're able to understand...

It's a pain that almost brings out evil in you. The edge is so sharp...it makes you angry...dangerous. When the edge subsides, even when it still hurts badly, we can get a grip.

There's no easy way to say this....but the best thing supporters can do is stay away from us...until that edge goes away.

I had to hold my infant daughter, then toddler daughter with that edge...using oxygen. Somehow, by GOD'S GRACE, I never got angry with her...I just kept my arm around her, holding the mask...Thank you God that I never flipped on my child.

Im sorry for your pain Tam...I sincerely mean that...

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Annette · Posted: Mon Feb 25, 2008 10:54 pm Post subject:

As supporters its natural to want to hug, to hold and to help soothe the pain. We know we cant fix it but the love inside keeps telling us we must do something ... God ! There MUST be something we can do to stop this. This is insane !

So we are torn between the urge to do this, do that and the logical knowledge that there isnt anything we can do at that moment. And torn is not an exaggeration, we do indeed feel torn inside. Its a different kind of pain, its not physical but it is just as real and it hurts a bloody lot.

Tami · Posted: Tue Feb 26, 2008 4:46 pm Post subject:

Thats so very try Annette u just dont know wot 2 do!!

You know if u go near them ur gonna get shouted at swung at and god knows wot else, but its so hard 2 just wait and watch.

I know sherri we dont feel the pain u do but we do feel the pain of hearing and see your loved 1 go though all that pain and not being able 2 stop it or just 2 make it better.

Sherri · Posted: Tue Feb 26, 2008 6:17 pm Post subject:

Tam and Annette...

That hurts nearly as much as CH's...we know you only want to help us...and we love you so damn much..."Hold me/get the F**k away from me...Pleaase help me/GET THE F**k AWAY FROM ME!"

It is insanity. And heartbreaking.

I know I would be a utter wreck in your shoes. It's hard for me to see another CH get hit...even another CH can't stop the pain...we understand, but we cannot do a damn thing either.

Tam, I do understand what it's like to love someone who's in agony and not be able to fix it. It is one of the most painful, helpless feelings in the world.

You're both doing great...don't think twice about that. You are there. That says everything. I love you and thank you both... :smt022

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Tami · Posted: Tue Feb 26, 2008 8:14 pm Post subject:

thanx Sherri

Sherri · Posted: Tue Feb 26, 2008 9:25 pm Post subject:

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Annette · Posted: Tue Feb 26, 2008 11:14 pm Post subject:

Guest · Posted: Wed Feb 27, 2008 3:33 am Post subject:

Guest · Posted: Wed Feb 27, 2008 3:34 am Post subject:

Oh shit..it's me SHerri...I forgot to log in...oops...