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Sherri · Posted: Tue Feb 12, 2008 9:36 pm Post subject: SHERRI'S STORY

"I'm sorry, you're going to have to take me home. I have a really bad headache..."

That was the understatement of all time. The moment my life was changing. The moment I entered into a world of pain I never imagined was possible. A world that no one would believe me in. A world I got left for dead in...a world I lost everything that ever mattered to me in. A world that I everything I worked for, everyone I put my heart into...would be for naught...

It was a Friday nite, like any other. An uneventful day. I didn't feel ill or in any kind of pain. In fact, it was a very happy time in my life. It was Spring and I was in love. When you're in love, the world looks different.

I took my time gettng ready...doing my hair and makeup extra carefully. Pampering myself....lotioning my legs, painting my toenails. Putting on a new outfit that looked great.

My boyfriend and I decided to just wing it that nite. Just drive and see where we ended up. What a bad decision that turned out to be!! We were about forty five minutes away when I got hit.

It was so SUDDEN. Literally as if I was stabbed violently in the eye. I grabbed the left side of my head and sucked in my breath, startling my boyfriend...and myself. I knew something was really wrong. My eye was swelling shut, my eye was tearing, my face started pulling to the left, my nose was running profusely, beads of sweat were riveting down my face off of my jaw, down my chest, down my back...

Oh THE PAIN!!!!! I braced my feet against the floor, I was holding the door handle and the emergency brake with all of my might. I felt like rocking...yelling. Being that I was with my boyfriend I was keeping myself in check, remaining quiet...just trying to hold on until I got home. That was extremely difficult. Of course he kept asking "Are you OK??"...and I could barely answer above a strained whisper.

The hit lasted the entire ride...it was horrible. Finally I got home, I lived with my parents then...and I went into the rec room, all the lights were out, and I propped myself up with pillows and laid down on the couch...tears were streaming down my face. I said "I feel like satan is trying to tear the top of my head off with his claws"...finally, it went away.

Then these "headaches" were happening everyday and every nite. I attributed them to other factors in my life...then even after I elimated what I thought was the cause and still got them...I didn't know what the hell to do.

I went on that way for about six to nine months. Standing in the bathroom at nite...holding a washcloth over my face...rocking...not getting much sleep, and getting these excruciating "spells" all day. I thought I had the worst sinus infection known to man. So I made an appt with an ear, nose, and throat specialist. After we ruled everything out, he referred me to a neuro.

Neuro diagnosed me immediately. I wrote my symptoms down on a piece of paper prior to my appt. I slid the paper across his desk. He read it, turned around and pulled a book down, paged through it, found the page, and slid the book across the desk to me...I read about me to a T. I am textbook.

He prescribed oxygen, which I thought sounded crazy. Two days later, it was delivered. At first I thought it didn't work because I wasn't using it right for CH.

And that was the beginning of specialist after specialist. Med after med. So, here I am...diagnosed with chronic, med resistant cluster headaches, irretractable headache disorder, chronic pain disease...

Ever since that fateful Friday nite, I've been gettning hit everyday...and that's that. It is what it is.
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"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

phil h · Posted: Wed Feb 13, 2008 11:40 pm Post subject:

The ride into hell..............So vivid and painful..... I'm sorry the ride continues . Thank you for sharing this . :smt104
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"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Sherri · Posted: Thu Feb 14, 2008 10:02 am Post subject:

Why Im sobbing...I couldn't tell you. Yes, it's still so vivid.

I never looked at it as the ride to hell...but, it was. I don't know if you've ever seen Planes, Trains and Automobiles.

There's a scene in the movie where John Candy drives under a tractor trailer, and Steve Martin looks at him...and he has a devil outfit on, and is laughing an evil laugh, and sparks are flying off of the car..it's as funny as hell...

For some reason that scene is going through my head.

Thanks Phil.

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Ike · Posted: Thu Feb 14, 2008 11:05 am Post subject:

How do we answer that? i don't know what to say i do feel it sweetie i really do

you may have lost so much because of CH but you now have all of us and thats from CH !

hugs xx
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If you dance with the devil the devil don't change, The devil changes you

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Sherri · Posted: Thu Feb 14, 2008 12:56 pm Post subject:

Thank God Ike.
_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

sophiashug · Posted: Fri Feb 15, 2008 12:50 am Post subject:

Aweful....really damn aweful.
Damn CH's.

K.