chronicclusterheadaches.co.uk

Sherri · Posted: Thu Jul 24, 2008 3:48 pm Post subject: Thank You...to ALL supporters

We do love you, and appreciate you...everyday of our lives.
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"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

phil h · Posted: Thu Jul 24, 2008 11:43 pm Post subject:

A great song and sentiment for all supporters................. Thanking all of you supporters , especially miss sherri , overidentification with pain allows a very special nonverbal form of support ....... I feel guilty that my family tries so hard , but don't really get me . Somehow there doesn't seem to be ESP in my family and they really feel powerless to help and support me when I just need space and not to answer their not so veiled attempts to take my physical and emotional temperature ..... Got to love their putting up with the thing that needs to be in his cave alone alot . I think they have far more tolerance and compassion than I might after this amount of time................ Sometimes I feel the prisioner of my ch pain.......... oh , I am .... But they are prisioners to dwelling under the same roof as their F**k loved one ............. Bless all of you supporters with or without CH's ....... Those without CH's get to experience all of the emotionally part of the illness and alot of physical pain as well . I have a pain in my head and my family has a real pain in the ass . All supporters end up suffering from PTSD.............. for that we are all very sorry........... and eternally grateful.

:smt104
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"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Sherri · Posted: Fri Jul 25, 2008 2:02 am Post subject:

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"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Sherri · Posted: Fri Jul 25, 2008 3:05 pm Post subject:

My supporters are right here...on this board. For that, CH's and non-CH's, I cannot thank you enough for the mere fact that you are simply here.

Still interested in talking with us CH's...having fun with us...going along for a ride you didn't ask for.

I feel no guilt toward my biological family, or any other extended family that came with people I've had a relationship with. They didn't support me ever...and still don't.

The only guilt I feel is related to my Bri. My little girl. Before she was even born, she was supporting me. There. Quietly waiting for Mommy to get better...she continued to do so, even as a toddler. Dragging her blanket and pillow over to me while I used o2. Quietly waiting for Mommy to get better.

One night stands out in my memory, that I look back in amazement at. We were in the car, Brianna and I...she was about four. I got hit while driving and pulled into some dark, little neighborhood. I mean it was pitch black. I was using o2, parked in front of someone's house. We were there about 25 mins...until I could drive.

She didn't say a word. Didn't fidget or complain...she sat quietly, waiting for Mommy to get better. She is a great supporter...and genuinely caring and kind, even concerned.

I've drug her out of the mall, at lightening speed to get to the car to use o2...drug her out of alot of places/events where she was really having fun...to run to o2. Always, she sat quietly.

Many times I've passed out by the 02 tank, to wake up with her sleeping on top of me...or snuggled under my arm, with her arm around me. :smt022

To this day, she is always concerned, genuinely. She asks everytime, as if it's the first time I've ever been hit -if Im ok.

Thankyou Brianna, and CCH family.
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"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Ike · Posted: Sun Jul 27, 2008 9:48 pm Post subject:

that made me cry thank you Bri ! thank you Bri from the bottom of my heart for being you and for being mommys little

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If you dance with the devil the devil don't change, The devil changes you

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