Joined: 25 Nov 2007 Posts: 1162 GENDER: Male CHRONIC: yes EPISODIC: no SUPPORTER: no
Location: hertfordshire, uk
Posted: Tue Dec 18, 2007 7:44 pm Post subject: Tony Getting a Ch Attack
This is a video of tony having a cluster headache, Please Take the time to watch it, It will be posted on the front page of the site soon but i wanted you that have not seen it yet to see it.. Thank you tony for letting us use your video, It has me in tears each time i watch it.. Its an eye opener to those who don't know what ch is... And for us that do know and feel it everyday its nice to know that we are not alone and its ok to scream and cry...
Joined: 25 Nov 2007 Posts: 1427 GENDER: Female CHRONIC: yes EPISODIC: no SUPPORTER: yes
Posted: Tue Dec 18, 2007 8:01 pm Post subject:
Thanks Tony.
What I find interesting about this video (Ive seen it a few times) is that we can identify with each stage of pain he's at...when you start the "head grab"...moving your legs...then bursting out into tears losing it, getting it back together...
I know what he's feeling at just by observing him...something we are all united by...the only difference with me is Im covered with sweat. I get a bit more "wet"...between the unbelievable beads of sweat riveting down my face and body, my nose running and slobbering...it's a mess.
I can't take when he starts crying...it makes me burst out into tears every single time...I HATE that so much...remember, this is why we need eachother so much....so much...WHO else could POSSIBLY UNDERSTAND what this ACTUALLY FEELS LIKE. I love you guys.
I thank you again Tony...I didn't forget about the mugs...I'll be getting them. Had to wait a bit. _________________ "Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.
Last edited by Sherri on Tue Dec 18, 2007 8:13 pm; edited 1 time in total
Joined: 25 Nov 2007 Posts: 1427 GENDER: Female CHRONIC: yes EPISODIC: no SUPPORTER: yes
Posted: Thu Dec 20, 2007 11:37 pm Post subject:
This video breaks my heart every single time I watch it.
From a CH'rs perspective...we KNOW exactly HOW Tony is feeling, what level of pain he's in...the level he is reaching.
When he breaks down crying, about five mins. into the attack, my heart clenches. You just want mercy. The pain he is feeling is INTOLERABLE...when you begin to cry like that, you are losing control, and you simply cannot handle it...yet you know you can't stop the pain.
He is crying tears of frustration, fear, dread and gutteral sadness...complete hopelessness.
I pray we see a cure somehow. Thank God, somehow someone caught on to the use of oxygen as an abbortive. I often wonder how on earth they did...how they put two and two together.
I can understand why you'd be offered oxygen when in such a frenzied state, but to have the clarity that it abborted the hit?? That is God's hand, for sure. Im just grateful. It's such an odd thing to even think of as an abbortive.
When my neurologist prescribed OXYGEN for me???? I really thought he was nuts. Happily, he was correct. _________________ "Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.
Joined: 29 Nov 2007 Posts: 1667 GENDER: male CHRONIC: yes EPISODIC: no SUPPORTER: no
Location: red bank ,new jersey , usa
Posted: Fri Dec 21, 2007 4:25 pm Post subject:
I can't watch this all the way through................. I begin to feel uncomfortable inside , like a sympathy hit is starting . I can't watch without rogking in my chair .. Too painful ............. phil h _________________ "Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra
Joined: 25 Nov 2007 Posts: 1427 GENDER: Female CHRONIC: yes EPISODIC: no SUPPORTER: yes
Posted: Fri Dec 21, 2007 5:51 pm Post subject:
Phil,
I know EXACTLY what you mean...power of suggestion, sympathy..whatever it is...I too sometimes feel a shadow watching others...it's too close. _________________ "Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.
Joined: 25 Feb 2008 Posts: 9 GENDER: male CHRONIC: no EPISODIC: yes SUPPORTER: no
Location: USA
Posted: Mon Feb 25, 2008 5:27 am Post subject:
Thank you for posting this Tony. Like many others have said, how do those who have never had a CH or have never seen anyone have a CH know what it's like. What I hate the most is when you're talking to someone about CH's and they're like, 'I have migraines too! They Suck!'
They just don't understand.... _________________ --The end is near. The end is coming.
Joined: 25 Nov 2007 Posts: 1427 GENDER: Female CHRONIC: yes EPISODIC: no SUPPORTER: yes
Posted: Mon Feb 25, 2008 6:22 am Post subject:
We all joke about that...the "Oh I have migraines too!! Sometimes I have to lay down and just go to sleep"...and you're thinking "You F**k idiot"...it's twisted CH humor.
The most difficult part of dealing with CH alone is no one understanding...thinking you're just being dramatic...blah blah blah.
You'll read some twisted humor here...between us...laugh or cry right?
We understand first hand...that video is heart wrenching to watch, and makes me weep every time. You're amongst your own kind now...that's kind of scary... _________________ "Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.
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Bless your broken heart... 
