chronicclusterheadaches.co.uk

phil h · Posted: Sun Aug 30, 2009 4:10 am Post subject: Were you invited to the dance ?

The beast came early . 11:15 pm Saturday night . Normally we don't begin until 1 or 2 am . Well welcome to the the Dance with Devil Dancathon . Here we go again . I'm picked again for the next dance. Shit ! :smt104 :smt108 :smt108

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"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Sun Aug 30, 2009 3:35 pm Post subject:

I hear you Phil i got an early wake up this morning well last nite, Hang on to something and ride it out with your bag of tricks, red bull ice packs and possitive thoughts

Im with you Phil
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

phil h · Posted: Sun Aug 30, 2009 5:21 pm Post subject:

Thanks Ike. Went a mtg this morning and had to stand outside for awhile , then waited in the car for Laura for 30 minutes . I felt a little funny then the beast appeared to dance somemore . Had all my tricks with me . I forced myself to go to see a buddy celebrate 26 years . Shook his hand outside and never made it in . ..... Oh well....... :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Mon Aug 31, 2009 8:44 am Post subject:

Oh Phil that really sucks, Beast has a lot to make up for.. all the stuff we miss just because he wants all our attention !

i hope today is a better day for you
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

Shedz · Posted: Mon Aug 31, 2009 4:10 pm Post subject:

Positive vibes to you guys, seems like Mr Beastie puttin in a lot of overtime lately :smt022
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If it don't kill me,it'll make me stronger???
I push my fingers into my eyes, Its the only thing that slowly stops the ache......
http://www.youtube.com/watch?v=Xps7AM8HbjE

phil h · Posted: Tue Sep 01, 2009 10:41 am Post subject:

Thanks pal .Better days ahead for all of us . :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Jill · Posted: Wed Sep 02, 2009 2:02 am Post subject:

Hey Phil...

Sorry about the dances. I am in the same boat.. it is four in the morning right now and I have been up since 1:30...

No sleep and too much head pain makes for a long and rough day.

Here are some vibes to you and remember that you are not alone.

Jill :smt108 (me too)
_________________
What lies behind us and what lies before us are small matters compared to what lies within us.
-Ralph Waldo Emerson

phil h · Posted: Wed Sep 02, 2009 11:55 am Post subject:

Jill , Positive vibes coming your way . Hope this keeps you from becoming delusional from pain and lack of sleep .

Hang on . Love , clusterf--ked phil
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

phil h · Posted: Fri Sep 11, 2009 12:24 pm Post subject:

Had no idea that I entered a marathon dance contest with the beast...... I'll get someone to take me for trigger points today . It's been rainning for 14 hours , no let up in sight . Lost power for 8 hours . Would have been ok if not for the constant sirens all night . More music to dance to . I can't wait to feel well enough to begin living again ......... for now I dance on with weary feet . Bad enough I have I have 2 left feet .

:smt108 :smt108 :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

phil h · Posted: Fri Sep 11, 2009 12:28 pm Post subject:

Oh great ! Thunder and lightning now ........... my survival is not without many challenges .....WTF..... Everyone have a pf day while I go become a numbskull ! ! !

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Jill · Posted: Fri Sep 11, 2009 7:48 pm Post subject:

How are you doing Phil? Did the storm at least stop?

I think that the beast must have all of our numbers or something... it is so strange the way that we can all get slammed around the same time. I have not been too bad this afternoon though I have had a lot of coffee and that might have helped. Who knows at this point.

I really hope that you get a break soon and let us know how you are doing!

Hugs and vibes

Jill :smt104
_________________
What lies behind us and what lies before us are small matters compared to what lies within us.
-Ralph Waldo Emerson

phil h · Posted: Fri Sep 11, 2009 11:28 pm Post subject:

Thanks Jill . I hope you stay well . Rain slowed down . I got trigger point injections at 10am , beast came a knocking at 5pm ...oh well , this weather and season are tough . It is strange that we all seem to get whacked hard around the same time ; so far apart geographically ...... Maybe it's like how Santa Claus knew where to find us ? Again , love your web site ..... nice,nice job !

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Jill · Posted: Sat Sep 12, 2009 5:57 am Post subject:

I had a rough night here too - we had lots of rain and I am assuming that is what did it. I swear I could be a weather predictor and just use the pain in my head. :(

I love the idea about the Santa Claus - there must be something out there that is world wide and connects us all to the beast. You know like the Chaos theory - a butterfly flaps his wings somewhere and we all get CH.

Thanks for the compliment about the site - it is a work in progress! I want to change a few things around and then I have to work on spreading the word some more - so pass it on if you do not mind! :)

Hugs Phil and all...

Jill
_________________
What lies behind us and what lies before us are small matters compared to what lies within us.
-Ralph Waldo Emerson

phil h · Posted: Sat Sep 12, 2009 10:47 am Post subject:

Thank you Jill . Hopefully you will experience some reduction in pain . Keep that coffee on ! Site posted and passed on ; will continue !

:smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Jill · Posted: Sat Sep 12, 2009 7:10 pm Post subject:

You know.. who ever invented coffee is an angel! Just so ya know!

I would have never said this a month ago, I hated coffee than and rarely drank it unless I was desperate but now I have it everyday! It is a blessing with the headaches... and is cheaper than the energy drinks.

The coffee is always on here!

Just had to share that...

Jill

PS Phil you still rock!

_________________
What lies behind us and what lies before us are small matters compared to what lies within us.
-Ralph Waldo Emerson