Aileen

Ike · Aileen

Guys, She is really getting her ass kicked and could really do with some help as far as meds o2, anything as a quick fix, what ever helps

Sherri

Eating what?

Ike

Aileen where in the uk are you ? Im just getting the o2 form and info and ill send it to your email address in a bit,
Go to your gp and get oxygen, If they look in their book it's in there as listed treatment for ch. If you get any trouble post here and ill sort that for you (some dont like giving it)

For now Ice packs or heat packs will help a little, Drinking a red bull (or any of the energy drinks i use Kick form tesco much cheaper) anyway drink one as soon as the hit comes and drink it fast ! as fast as you can this can quite often stop the hit in it's tracks and can be a real life saver. As far as drugs go there are lots to speak with doc about but o2 being your first start! Also get some frovatriptan, If you get your hits at night take it before bed and you will get a good night but it only last 12 hrs but for me it will keep the hits away for 24hrs sometimes. Dont use too much though. Steriods (pred) can be really helpful and give you lots of painfree time but only while your taking them but as a break can be great,

How far away are you ? I could bring you o2 or somerthing ?

There are lots of preventatives out there ive tried so so many but they are always worth trying, lithium, topamax etc..

The others will help too, But if you need to talk here's the place. Also check out www.ouchuk.org they are fantastic with tips and advise but the message board is a bit slow..

Hang in there im sorry you have to be here but glad you came.

Dont suffer alone

Sherri

I was kidding with you Ike...

Aileen, welcome. I know its horrible. Im med resistant and chronic. Im from the States, I wish I could do something for you.

I like your idea about naming CH your exhusband's name!!!!!

That's great. Very good that you have a sense of humor...that goes a long way with this.

Im with you, we all are. In my thoughts and heart, Im dragging you through it....whether you like it or not.

That's why we're all here. Ask Ike how it all started with him and I. One PM I sent to him, telling him I always thought of him and Tam, though I didn't post back. I sent it when I was about to leave another site.

Ike and Tam, are soulmates to me. I love them dearly, and their children. Just hang on girl. Hang on tight. Keep coming back.

phil h

Ike , Find her . We can help, or at least try .

:smt022

Ike

She is off to the docs today so hopfully she will get some of what she needs...

Hoping she will be back soon

phil h

Hope she gets some help !

Shedz

Ike, Aileens only 30mins away from me, Can helpif needed mate

Ike

Thanks Paul that could be very helpful ive not been able to get in touch with her again though she had docs on monday and ive not heard for her since,

Ive emailed a few times ill keep trying...

phil h