Tony Getting a Ch Attack

Ike · Tony Getting a Ch Attack

This is a video of tony having a cluster headache, Please Take the time to watch it, It will be posted on the front page of the site soon but i wanted you that have not seen it yet to see it.. Thank you tony for letting us use your video, It has me in tears each time i watch it.. Its an eye opener to those who don't know what ch is... And for us that do know and feel it everyday its nice to know that we are not alone and its ok to scream and cry...

Thank you tony

Link

Sherri

Thanks Tony.

What I find interesting about this video (Ive seen it a few times) is that we can identify with each stage of pain he's at...when you start the "head grab"...moving your legs...then bursting out into tears losing it, getting it back together...

I know what he's feeling at just by observing him...something we are all united by...the only difference with me is Im covered with sweat. I get a bit more "wet"...between the unbelievable beads of sweat riveting down my face and body, my nose running and slobbering...it's a mess.

I can't take when he starts crying...it makes me burst out into tears every single time...I HATE that so much...remember, this is why we need eachother so much....so much...WHO else could POSSIBLY UNDERSTAND what this ACTUALLY FEELS LIKE. I love you guys.

I thank you again Tony...I didn't forget about the mugs...I'll be getting them. Had to wait a bit.

Sherri

This video breaks my heart every single time I watch it.

From a CH'rs perspective...we KNOW exactly HOW Tony is feeling, what level of pain he's in...the level he is reaching.

When he breaks down crying, about five mins. into the attack, my heart clenches. You just want mercy. The pain he is feeling is INTOLERABLE...when you begin to cry like that, you are losing control, and you simply cannot handle it...yet you know you can't stop the pain.

He is crying tears of frustration, fear, dread and gutteral sadness...complete hopelessness.

I pray we see a cure somehow. Thank God, somehow someone caught on to the use of oxygen as an abbortive. I often wonder how on earth they did...how they put two and two together.

I can understand why you'd be offered oxygen when in such a frenzied state, but to have the clarity that it abborted the hit?? That is God's hand, for sure. Im just grateful. It's such an odd thing to even think of as an abbortive.

When my neurologist prescribed OXYGEN for me???? I really thought he was nuts. Happily, he was correct.

phil h

I can't watch this all the way through................. I begin to feel uncomfortable inside , like a sympathy hit is starting . I can't watch without rogking in my chair .. Too painful ............. phil h

Sherri

Phil,

I know EXACTLY what you mean...power of suggestion, sympathy..whatever it is...I too sometimes feel a shadow watching others...it's too close.

Annette

Yes, that is what it feels like to be a supporter, watching someone get hit. When the person is your loved one, it hurts even more ...

Supporters have to watch this day in day out, several times a day when their CHer is going through a high cycle ...

I never knew broken heart can get broken again and again but my heart breaks each and every time I hear or see someone taking a hit !

:smt022

Sherri

Annette...

Bless your broken heart...

hacker22

Thank you for posting this Tony. Like many others have said, how do those who have never had a CH or have never seen anyone have a CH know what it's like. What I hate the most is when you're talking to someone about CH's and they're like, 'I have migraines too! They Suck!'

They just don't understand....

Sherri

We all joke about that...the "Oh I have migraines too!! Sometimes I have to lay down and just go to sleep"...and you're thinking "You F**k idiot"...it's twisted CH humor.

The most difficult part of dealing with CH alone is no one understanding...thinking you're just being dramatic...blah blah blah.

You'll read some twisted humor here...between us...laugh or cry right?

We understand first hand...that video is heart wrenching to watch, and makes me weep every time. You're amongst your own kind now...that's kind of scary...