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Em

Welcome Luveemom!

Hello there! Welcome! Tell us a bit about yourself and make yourself comfortable.

Em
luveemom

Hello All

Thanks for the Welcome!
I am a 41 yr old Mom, have had clusters since I was in my 20's but was not diagnosed until 3 years ago.  I was taking 200mg of topamax for prevent and just went off it about a month ago due to bad side effects.  I am hoping my neuro has something else in mind...Last time I saw him he said Verapamil was my only other choice....I can't take any triptans...so I am a little concerned since I have read some scary things about Verap...I am chronic also..I met Ike on another board for clusters last year and I am happy to find some new friends.

Alicia
Ike

Alicia
Im so chuffed your here its been ages since we spoke before riley was born i think! how are you ? there are many other things you could try ive never been on dopymax before but heard lots about it ! Dont be too worried about trying verapamil its worked very well for many without side effects and most of the drugs we have are naqsty in one way or another! verap was no good for me but might be just what you need who knows till you try. keep the o2 handy X
Annette

Hello Alicia, lovely to meet you !

Hope things improve for you and that Verapamil works well. It worked well for my husband.

Painfree wishes to you  
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