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Sherri · Posted: Tue Sep 15, 2009 4:49 am Post subject:

Me too guys...I find it really strange too, I mean that we all get slammed at the same time, and we're all so geographically far apart...Phil only lives an hour and something from me, so Im not surprised when he feels as awful as I do, but then when he would tell me that you guys were getting creamed too I found that odd.

There's some golden thread that links all of us, thats it period in my mind.

I love Red Bull, but they are really exspensive...Jill is right...coffee is much less exspensive, and I don't question a good thing anymore if you know what I mean...

It's after Midnight here, and I've been getting slammed for the past two days around the clock, but that's not out of the ordinary for me...I was lucky...I got a few hours of sleep.

Sleep heals me...is my best, best friend with CH...at this moment, I feel normal. Im not delusional, having anxiety attacks, I can think straight...My God, it feels great to feel normal. Im starting to get tired again, and hope to sleep some more A hit woke me up...but since I had gotten some real sleep, I handled it better. Goodnight CCH Angels

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

phil h · Posted: Sat Sep 19, 2009 7:23 am Post subject:

Ice packs , cold shower , coffee , rock star , red bull , lidocaine , clonidine................walking , grumbling , spitting , howling............ :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

phil h · Posted: Sat Sep 19, 2009 7:54 pm Post subject:

Passed out for 4 1/2 hours .......Dreamt I was dying slowly from a wound to my head . I was awakened by a tremendous CH ......... Happy to be alive ; not happy to be in pain .....I guess that is really a reoccuring nightmare that many of us may have had . I assume I was suffering, but passed out and had so lower level K's while I slept . I do feel a little stronger .............. I must prepare for the encore . I need cigarettes , energy drinks , made the last pot of coffee at 3am . I gotta go get supplies ....................... Ike , I forwarded 2 emails to you . 1 from Micaela and another from Ree . :smt108 :smt108 :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Sat Sep 19, 2009 10:30 pm Post subject:

Phil sounds like you were getting hit while asleep maybe ? really sorry you had to go through this shit i really am, im hoping that the rest of the day has gone a lot better i really do. I got the emails and Ree's really broke my heart poor lady i just .............
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

phil h · Posted: Sun Sep 20, 2009 2:06 am Post subject:

Back into the bunker . Closing the hatch for awhile . Very sound and light sensitive . Turning off computer for awhile......Haven't been able to connect with Sherri . Tried texting , email and phone since 3 pm . She may be under too . :smt108 :smt108 :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

phil h · Posted: Sun Sep 20, 2009 8:32 am Post subject:

I came up for air , shower and ice packs . This night life , it's a hard life and you know it's killing me ! It's a hard , it's my life ! Whoopie chair.gif chair.gif chair.gif chair.gif

MEGA1.gif

:smt108 :smt108 :smt108 :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Sun Sep 20, 2009 12:22 pm Post subject:

Sending you all i have Phil, I really do worry about you please keep faith and do what ever you need to get through this rough patch ...

Thinking of you
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

phil h · Posted: Sun Sep 20, 2009 12:25 pm Post subject:

Thanks Ike . How are you doing ? I am aware I' :smt108 :smt108 :smt108 :smt108 m not the only one getting hit hard ..........
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Sun Sep 20, 2009 12:31 pm Post subject:

Im in ok spirits but getting slammed really hard, ive got a F**k tooth ache and that is really setting my head off, I cant cope with light today its very sunny outside as as soon as the light hits me BANG im hit within seconds of being in the light..... it's been years since ive been like that F**k hate it ...
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

phil h · Posted: Sun Sep 20, 2009 12:35 pm Post subject:

Sorry ....... I'm avoiding the light as much as possible ...... good luck

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

phil h · Posted: Sun Sep 20, 2009 11:51 pm Post subject:

I just got an electrical shock trying to repair a lamp . Handy I'm not ! My head and pain aura cleared .... I don't know what happened. interesting.... I will not try to replicate this experience.......... have any of us had shock therapy ? I must look into this ! Always a hopeful suffering insufferable chronic clusterhead !

:smt108 :smt108 :smt108
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Mon Sep 21, 2009 8:42 am Post subject:

Holy shit no ive not had anything like that but hey if a small shock will get rid of a ch then ill be happy to set up a 6v battery and set it up to shock me a little.. Hey ill try anything once
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk

phil h · Posted: Mon Sep 21, 2009 11:18 am Post subject:

DO NOT TRY THIS AT HOME ! Bumbling electrical morons only , please .

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Sherri · Posted: Mon Sep 21, 2009 10:06 pm Post subject:

Ouch guys. Having a rough day...my head is not at all good. I had to go to the Dr. today, and the light in the office was killing me. I had my sunglasses on, and was covering my eyes too.

Phil, I have a standing invitation to the dance...with no expiration date. So Im always invited, the car is always waiting for me, around the clock.

On the way there, my head was pounding. While I was sitting in the waiting room it was just pounding, I could feel it, inside and out. I had my fingers on my temples, and could literally feel the vein in my temple standing out, and pulsing. I took some meds on the way there, and it took awhile for them to kick in. I was left waiting a long time, so they kicked in right before I saw the Dr. Then they just wore off again. I am very, very lucky today. An angel brought me a few Reds Bulls and some Rock Stars to drink and Red Bull shots. I have put one in the freezer, and Im waiting for it to get cold.

Oh, one Dr. I went to suggested shock treatment for me. I looked at him like he was out of his mind. I thought it sounded kind of barbaric, and outdated. I pictured myself with a metal skull hat on, and metal ear things, kind of like ear phones that are flat and metal. It just sounded really freaky and frightening to me. They strap you down, a tongue blade is put in your mouth between your teeth so you don't bite your tongue, and zap you with a high voltage of electricity. It hasn't changed. Shock treatment is just as barbaric as it was.

I asked a few people about it, and they said don't do it. I am afraid I will not be me anymore, lose my personality and become catatonic. So what is the lesser of two evils? Maybe it would work, and I no longer would have CH but I"d no longer be me either. And maybe it wouldn't work and I'd lose my personality from it as well. Has anyone had it? If anyone has, I'd like to hear about it, and if it helped and if anything about you changed. I feel it's a huge risk, and may damage me irreversibly and I'd still have CCH's anyway.

My head hurts...God Im tired of this. I hope you're all having a good, pf day. Love and Peace to all my CCH Angels.

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

phil h · Posted: Mon Sep 21, 2009 11:37 pm Post subject:

May I have the next cluster dance with you ? You can lead as always..... just don't step on these blue suede shoes.........

Just too sweet to be real ! Oh yeah !

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra