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Ike · Posted: Sun Oct 25, 2009 11:44 pm Post subject: F**K

AARRGG damn ... was going well today too ... after the strom passed i was feeling good ...

Where did that come from .. Guess i wont be sleeping tonight now im buzzing from red bull and meds .... hating this shit ... hagte this buring half a head feeling ive got now too,

Board is empty hope you all ok.. Shedz im thinking of you bro, i know how bad you have had it today
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Sherri · Posted: Mon Oct 26, 2009 10:24 am Post subject:

Our timing seems to suck!! I waited all day for you guys yesterday...

I kept the board up, minimized it, listened to music...then I'd check...noone.

I must've done it about 15 times...I didn't feel good. I finally gave up about 9pm my time. And watched "Dexter"...

Sorry you had that kind of nite...I think the "burning" hits are the worst, for me anyway. I find them the most unbearable. It's almost 6:30am here right now...I didn't sleep the best either.

I can't take being amped from meds...that why I cannot tolerate Topomax or immitrex, etc. I feel like Im tearing out of my skin, and losing my mind. Hope you're ok. Maybe I'll run into you sometime today.

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"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

phil h · Posted: Mon Oct 26, 2009 10:27 am Post subject:

Have a better day Ike ...........

The storm passing usually brings relief , maybe not immediately............but it will come !

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Ike · Posted: Mon Oct 26, 2009 6:25 pm Post subject:

Holy F**k

Maybe the worst hit of my life,
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If you dance with the devil the devil don't change, The devil changes you

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phil h · Posted: Mon Oct 26, 2009 6:55 pm Post subject:

Hang on ! It will pass .....

_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Sherri · Posted: Mon Oct 26, 2009 9:35 pm Post subject:

What happened?? Super long...or super intense or both?

Hang on tight Ike...if you hang on, you'll make it. We're waiting for you, and thinking of you....

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Ike · Posted: Tue Oct 27, 2009 12:30 pm Post subject:

Holy F**k that was a new one .... Ive never had one start from the back of my head, This burning pain started at the bottom of my skull, Worked it's was up in what felt like seconds then hit the spot and became the most intense hit ive ever had k11 ! and lasted about 2hrs it really was the worst one ive ever had and has now changed the kip scale for me...

Im praying i never have that again ever.. My neck shoulder and top of my back are stiff and 'burn'

God i love you guys i really do... i was trying to think about standing there with you while the hit was there and we were hugging and chatting away.. That really helped me through it....
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If you dance with the devil the devil don't change, The devil changes you

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Sherri · Posted: Tue Oct 27, 2009 12:35 pm Post subject:

Ike...they're the kind of hits I get all of the time...the shoulder pain, then it travels up, and the pain is beyond mind blowing....

Always, think of us, all around you...comforting you, picking you up...I often use that too...

Im so sorry you went to level 10++++...it shakes you up.

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Ike · Posted: Tue Oct 27, 2009 12:40 pm Post subject:

Thank you, I get what i call normal ch, but the just starts behind the eye and gets worse and worse, Ive never had it start from there holy F**k that was new...

Maybe it's more intense because it's different? im not sure, I have never felt sick with ch ever this was the first time, weird i couldnt see right it was just a mess and the new symptons were like a curve ball..
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If you dance with the devil the devil don't change, The devil changes you

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Sherri · Posted: Tue Oct 27, 2009 12:50 pm Post subject:

Mine began that way...I remember saying "This may sound wierd, by my headaches start in my shoulder. My shoulder hurts, and I keep rotating it, rubbing it...then it travels up to my neck, my neck becomes like steel...and then the temple pain, the eye, the face...It happens very, very quickly...within 5-10 mins you're at that 10+++++ level. And when it happens over and over in the same night...that's were the suicidal thinking starts coming in...or hurting yourself...put simply it's unbearable.

I truly thought it was just an individual thing, but I have read all of those symptoms in a medical textbook. Hopefully, for you, it's a one time thing or a once in while thing...

That's why I tend to get terrified, because I know that Im going to a hell that not too many people could possibly understand. You find all the things you felt in CH literature. Im so sorry Ike... :smt022

_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

phil h · Posted: Tue Oct 27, 2009 2:54 pm Post subject:

More F**k variations of this F**k up deviant form of migranes we have . No rules , changing types of attacks , we adjust to a new part of hell and then the beast offers/forces to experience new parts of hell . Our realities suck................but , it is what it is .............varying temperatures and burns in hell .........................then it passes leaving us wasted and confused about changes..... we survive , sometimes not too well.......................tightness in the back and neck is a source of pain waiting to F**k us . We need to tend to those areas and try and relax and sooth the tightness ......either good deep tissue massages to rub out the knots or shots .......... either way a second set of hands is needed ........................Lord I pray for our salvation and continued adaption of survival/preventative skills to lessen our pains . I also pray that our pains may be taken from us . Amen.
_________________
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra

Shedz · Posted: Thu Oct 29, 2009 4:06 pm Post subject:

Shit Bro and you Sherri, and there was me thinkin I was the only one.... Seems to me a few people get them that way now and again, when that happens to me thats what I always classed as a K10

My Dr is trying to get me a referral for the Pain Management clinic in Norwich where they do deep tissue massage to get rid of the tightness in the muscle, to me it feels tight as a piano string....
Wishing you all some respite however it comes

_________________
If it don't kill me,it'll make me stronger???
I push my fingers into my eyes, Its the only thing that slowly stops the ache......
http://www.youtube.com/watch?v=Xps7AM8HbjE

Sherri · Posted: Fri Oct 30, 2009 2:49 pm Post subject:

Paul...

Do yours always start in your shoulder too? I don't talk about it much, I don't want to have a pissing contest with anyone. They hurt no matter what...

To be honest with all of you I don't know what anything less than a 10+++ is. I don't understand a "kip 6 or 7, etc". It's ALWAYS THE SAME. My pain level is always over the top...from hit #1. Probably because my neck is really messed up.

I don't' understand "shadowing" either. I understand residual pain...afterwards, when I feel like I've been beaten almost to death. I try to understand....

At times, I've told you guys before, I get the sensation that there's a pebble under my skin, above my left eyebrow right in the middle...but that means a CH is eventually coming. My head also gets achy, meaning the same thing. It doesnt last long, it comes quickly after I feel those symptoms....I get pain in my gumline as well. My left front tooth aches....oh God, and my face.

Please understand, I am NOT saying I have it the worst....or comparing myself to anyone. It is what it is. Im just telling you all the truth...this is what CCH is for ME.

Im not attempting to tell you I have it worse than all of you. Just like I don't understand shadowing...and 6 or 7's, Im sure you guys can't understand me.

There is no "worst hit of the day"...they're all just as painful. I have different types of pain...as I said the burning one is the worst.

God, that felt good to say finally. Im sorry....please don't be angry at me.... :smt022
_________________
"Great spirits have always encountered VIOLENT opposition from the MEDIOCRITIES." -Einstein.

Ike · Posted: Fri Oct 30, 2009 3:26 pm Post subject:

I class a shadow as the same pain as after a hit but it's before and doesnt turn into a full hit but can last hours and hours... But i still class this as pf so when i say im pf im still getting shadows but not the full hit it's self...

I guess thats how i describe it, Its a hard ball sometimes as it's almost always a curve ball !

Hugs guys
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If you dance with the devil the devil don't change, The devil changes you

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Ike · Posted: Fri Oct 30, 2009 3:27 pm Post subject:

Shedz i hope the pain clinic does some good for you i really do
_________________
If you dance with the devil the devil don't change, The devil changes you

Email me, Admin@chronicclusterheadaches.co.uk