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greetings fellow cluster warriors

 
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kcopelin
CCH Newbie
CCH Newbie


Joined: 28 Dec 2007
Posts: 1
GENDER: female
CHRONIC: yes
EPISODIC: no
SUPPORTER: no


Location: california

PostPosted: Sun Dec 30, 2007 5:11 pm    Post subject: greetings fellow cluster warriors Reply with quote

Some of you know me through the CH.com site.  I've been a clusterhead since 1981, episodic until Feb 2005 and chronic since then.  O2 no longer works, Imitrex never did and other health issues prevent a truly therapuetic level of verapamil.  

Like many, I've lost jobs, relationships, hope and a few brain cells thanks to this.  The fact that we have a safe place to talk, and the fellowship of others who know our pain and with whom we can connect on an immediate deep level is a God-send.  

Ike, my family and I are praying for you, Riley and the rest of your family.  Thank you for taking the time to respond to this.
The main reason I came here was to share with others who deal with the beast on a daily basis.  There is power in numbers.

my whole hearted blessings and thanks to each of you,
pain free wishes,
Kathy

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a burden shared is no longer a burden.
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a burden shared is no longer a burden.
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phil h
Lord of the Beast
Lord of the Beast


Joined: 29 Nov 2007
Posts: 1667
GENDER: male
CHRONIC: yes
EPISODIC: no
SUPPORTER: no


Location: red bank ,new jersey , usa

PostPosted: Sun Dec 30, 2007 5:47 pm    Post subject: Reply with quote

Welcome Kathy . This a safe place . A place where the battle scarred clusterheads can find kindness and compassion . I too battle the beast daily . Fortunately O2 wosks for me 1/2 the time . I don't respond to most meds with any success .   FAITH  ( Friends are in this house )  is what I've found restored here .              peace....   phil h    
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"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. " Frank Capra
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Ike
Site Admin
Site Admin


Joined: 25 Nov 2007
Posts: 1162
GENDER: Male
CHRONIC: yes
EPISODIC: no
SUPPORTER: no


Location: hertfordshire, uk

PostPosted: Sun Dec 30, 2007 10:16 pm    Post subject: Reply with quote

Hey Kathy,

Thanks for being here.. im really pushed for time right now but ill reply to you as soon as i can, ill pm you a few things too, i just wanted to say welcome sweetie

Ike
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If you dance with the devil the devil don't change, The devil changes you

Email me,  Admin@chronicclusterheadaches.co.uk
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Annette
CCH Semi Pro
CCH Semi Pro


Joined: 01 Dec 2007
Posts: 302
GENDER: female
CHRONIC: no
EPISODIC: no
SUPPORTER: yes


Location: Australia

PostPosted: Sun Dec 30, 2007 11:24 pm    Post subject: Reply with quote

Welcome Kathy !

We have known each other for a while now and I am very glad to meet you again here. Looking forwards to be spending more time together.

Painfree wishes to you.
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